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Snossa 4th Annual Conference

Saturday August 14th (15:00 – 18:00 EAT)    
1st Hour 15:00 – 16:00 (EAT): Importance of a CNS Tumor Registry in SSA Planned speaker(s)
15:00-15:05 Introduction and welcome remarks Joyce Kambugu
15:05-15:15 SNOSSA President Address James Balogun
15:15-15:25 Collaborative process to develop resource adapted guidelines:
PODC Medulloblastoma example and lessons learned		 Alan Davidson
15:25- 15:35 Genomic landscape of brain tumors in SSA Solomon Rotimi
15:35-15:55 Keynote: Importance of Neuro-oncology registry in Sub-Saharan Africa Ekokobe Fonkem
15:55-16:00 Break  
2nd Hour 16:00-17:00 (EAT) Multidisciplinary break-through data driven science  
16:00-16:15 Use of neonatal dried bloodspots to evaluate germline cancer predisposition in gliomas Kyle Walsh
16:30-16:40 What’s next in neuro pathology – Liquid Biopsies to leapfrog
limited pathology capacity		 Desmond Brown
16:40 –16:55 Radiation-Oncology education needs in SSA Jeannette Parkes
16:55-17:00 Break  
3rd Hour 17:00-18:00 (EAT) Implementation and Utilization of a NeuroOncology Registry in Sub-Saharan Africa  
17:00-17:15 Current IARC CanReg 5: Gaps for neuro oncology use Henry Wabinga
17:15-17:30 Machine Learning in Neuro-Oncology: Can Data Analysis Change
Decision-Making Paradigms		 Isabelle Germano
17:30-17:45 Implementation barriers for establishing a neuro-oncology
patient registry (Interactive Discussion)		 Jonas Nsengiyumva & Teddy Totimeh
17:45-18:00 Special Topic: Harnessing social media for SNOSSA Monica Adams
Sunday August 15th (15:00-18:00 EAT)    
1st Hour 15:00-1600 (EAT) : Capacity Development for Best Practice Care Planned speaker(s)
13:00-13:05 Day 1 Overview and Day 2 Introduction Kristin Schroeder
15:05-15:20 Telemedicine in neuro-oncology: opportunities for improvement
in care.		 Na Tosha Gatson
15:20-15:35 Establishing neuro-surgery training program in Sub-Saharan
Africa: Mulago Neuro oncology residency program		 Hussein Ssenyonjo
15:35-15:55 Keynote -Brain tumours and COVID-19: the patient and caregiver experience (IBTA Survey results) Kathy Oliver
15:55-16:00 Break  
2nd Hour 16:00-17:00 What’s next? Advocacy and after therapy care for Brain Tumor survivors in Africa  
16:00-16:15 Establishing a Childhood Cancer Survivorship Program in
Rwanda		 Fidel Rubagumya
(pending acceptance)
16:15-16:30 Neurocognitive impact of therapy – EORTC Low grade glioma
trial		 Brigitta Baumert
16:30-16:40 Physical therapy needs within neuro oncology community TBD
16:40-16:55 Neuro oncology patient advocacy for care along cancer
continuum		 Bonni Suckling
16:55-17:00 Break  
3rd Hour Tumor Board and Wrap Up  
17:00-17:20 Tumor board – Case Discussion Ghana MTB
17:20-17:25 Closing remarks Joyce Kambugu
17:25-18:00 Annual Business Meeting James Balogun /
Teddy Totimeh
Speakers:




Joyce Kambugu, MMed is the
SNOSSA 2021 Conference CoChair,
SIOP-Africa President, and
Head of Pediatric Oncology at
the Uganda Cancer Institute



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Desmond Brown MD, PhD, is an
Assistant Clinical Investigator,
and head of the Neurosurgical
Oncology Unit at the National
Institute of Health



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James Balogun, MD is the
SNOSSA President, Faculty at the
Department of Surgery, College
of Medicine, University of Ibadan
and consultant neurosurgeon to
the University College Hospital
(UCH), Ibadan.




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Alan Davidson, MD is a
Professor of Paediatric
Oncology and the Head of
the Paediatric Haematology
Oncology Service at the Red
Cross War Memorial
Children’s Hospital
(RCWMCH)



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Brigitta Baumert MD, PhD, is
head of the Department of
Radiation Oncology at MediClin
Robert-Janker Clinic in Bonn
and and is the principal
investigator of the EORTC joint
trial on the treatment of patients
with a lowgrade glioma.




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Na Tosha Gatson, MD PhD, is
the Medical Director of
Neuro-Oncology at Banner
MD Anderson Cancer Center
in Phoenix, AZ.







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Isabelle Germano MD, MBA
is a Professor of
Neurosurgery, Neurology,
Oncological Sciences and
the Director of the
Comprehensive Brain Tumor
Program at the Icahn School of Medicine at
Mt Sinai.

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Hussein Ssenyonjo MD is a
neurosurgeon from
Makerere University,
Uganda.





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Jonas Nsengiyumva, MD is
the head of the Department
of Oncology at the Ministry of
Health in Burundi and head of
the Bujumbura population
based cancer registry

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Bonni Suckling is the
founder of the Rainbows
and Smiles Childhood
Cancer Foundation, which
offers emotional, social and
financial support to families
of children diagnosed with
cancer.
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Kathy Oliver is Chair and a Founding
Co-Director of the International Brain
Tumour Alliance (IBTA), a dynamic
worldwide community for brain tumour
patient organisations and others involved
in neurooncology.



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Teddy Totimeh MD, is the
SNOSSA Secretary and a
consultant neurosurgeon at
the University of Ghana
Medical Center




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Jeannette Parkes, MD is the
Head of the Department of
Radiation Medicine at the
University of Cape Town and
Groote Schuur Hospital.
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Henry Wabinga, MMed, MD
is a Professor of Pathology
at the Makerere University
and Director of the Kampala
Cancer Registry
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Solomon Rotimi, PhD is
an Professor in
Biochemistry at Covenant
University in Ota, Nigeria



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Kyle Walsh PhD, is
Associate Professor of
Neurosurgery and
Pathology, Director of
the Division of Neuroepidemiology,
at Duke University.

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Kristin Schroeder MD MPH is
a SNOSSA 2021 conference
co-chair and Pediatric Neuro-Oncologist at
Duke University and volunteer oncologist at
Bugando Medical Center, Tanzania




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Wael Zekri, MB.BCh (MD) is
an Assistant Professor of
pediatric oncology at the
National Cancer institute,
Cairo, Egypt




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